"Friends at NIH provides emotional, financial and logistical support to patients while they are receiving groundbreaking and life-saving treatments at the NIH."
“There aren’t adequate words to describe the relief that parents feel when they can focus 100% on their sick child and not on whether they will have a home, water, or electricity to return to.” – Katie from Minnesota
“[We are] not alone in this fight. There are people out in this sometimes gloomy world who care and try to bring hope where most of the time it seems there is none.” – father of cancer patient
Rescheduled: Join us Thursday, June 7th, 2018 for the Golf Tournament!
Friends of Patients at the NIH’s 10th Annual Golf Tournament at the
Argyle Country Club was rained out Thursday, May 17, 2018.
Enjoy food, drinks and special entertainment by the
Affordable Rock’n’ Roll Act Band, featuring Dr. Francis Collins, Dr. John O’Shea, Dr. John Tisdale, Dr. Michael Lenardo & more!
Help Friends at NIH Support Patients, like Dixon.
Friends of Patient at the NIH provided support to 17-year-old Dixon and his family last year when he came to the NIH seeking a stem cell transplant for Sickle Cell Disease.
This year Dr. John Tisdale, his physician, who has pioneered this experimental treatment, says it is safe to say Dixon is cured! What great words for Dixon’s family to hear!
Initially, Dixon’s father, Leonard, took him and his older sister, Flavia, to India from their native country of Uganda. Both children had Sickle Cell Disease.
The family could only afford treatment for one child at a time, so Flavia told her little brother, “You go first.” Unfortunately, Flavia died waiting for medicine.
When Dixon’s father heard about this treatment in the United States, he resolved to do everything possible to save Dixon’s life. Hear Dixon’s story in his own words, meet his father and the physician/researcher, Dr. John Tisdale.
Please help us help provide emergency financial support to many more NIH patients in clinical trials, like Dixon.