"Friends at NIH provides emotional, financial and logistical support to patients while they are receiving groundbreaking and life-saving treatments at the NIH."
“There aren’t adequate words to describe the relief that parents feel when they can focus 100% on their sick child and not on whether they will have a home, water, or electricity to return to.” – Katie from Minnesota
“[We are] not alone in this fight. There are people out in this sometimes gloomy world who care and try to bring hope where most of the time it seems there is none.” – father of cancer patient
2019 Friends’ Night Out
Celebrate With Us
Friends of Patients at the NIH cordially invites you to an evening
to celebrate 35 years of Hope and Discovery.
Please join Friends of Patients at the NIH for an intimate evening to celebrate the partnership of patients, doctors, and researchers to find lifesaving cures that benefit us all!
When: Thursday, October 24, 2019 – 6:00 pm to 9:30 pm
Where: The Amp Powered by Strathmore,11810 Grand Park Ave, North Bethesda, MD 20852
Parking: Old Georgetown Road Garage, 11580 Old Georgetown Road, North Bethesda, MD 20852.
For questions, please contact Therese Draddy at (301) 651-2885 or therese@FriendsatNIH.org
Dance to the music of the Affordable Rock’n’ Roll Act Band
Help Friends at NIH
Support Patients, like Amber and Dixon.
Amber, 8, has GAN, a rare degenerative neurological disease. Friends of Patients at the NIH, helped pay the mortgage of Amber’s family to relieve financial stress so both parents could be with her at the NIH while she was in an experimental study. Amber’s medical team at the NIH is attempting to not only to arrest the disease, but repair the damage.
They are doing this by placing a good gene into a “virus envelope” and injecting it into the spinal fluid. The hope is that it will float throughout the nervous system and replace the damaged gene where needed. Her medical team and her parents are optimistic that the treatment is going well.
Friends of Patient at the NIH provided support to 17-year-old Dixon and his family last year when he came to the NIH seeking a stem cell transplant for Sickle Cell Disease.
Dr. John Tisdale, his physician, who has pioneered this experimental treatment, says it is safe to say Dixon is cured! What great words for Dixon’s family to hear!
Initially, Dixon’s father, Leonard, took him and his older sister, Flavia, to India from their native country of Uganda. Both children had Sickle Cell Disease.
The family could only afford treatment for one child at a time, so Flavia told her little brother, “You go first.” Unfortunately, Flavia died waiting for medicine.
When Dixon’s father heard about this treatment in the United States, he resolved to do everything possible to save Dixon’s life. Hear Dixon’s story in his own words, meet his father and the physician/researcher, Dr. John Tisdale.
Please help us help provide emergency financial support to many more NIH patients in clinical trials, like Dixon.