Servando’s Story

Servando, a 37-year-old chef, from Tulsa, OK, has Chronic Myeloid Leukemia, or CML. His treatment has been more complicated than for most patients with this potentially fatal blood cancer. So as a last resort, he came to the NIH with the hope for a cure. In CML, the bone marrow makes too many white blood […]

Creative Ways to Help Patients and Caregivers

Supporters help patients in so many creative ways. Mina Jain, Research Coordinator in the NIH Clinical Center Physical Therapy Department asked her holiday party guests to bring gift cards instead of hostess gifts to donate to Friends’ patients and families. Mina delivered the bagful of colorful gift cards recently to Program Manager Therese Draddy. The […]

What Your Gift Means

Thank you to our generous donors from “Giving Tuesday” through the holidays, and to volunteers who wrapped gifts at the mall to benefit our patients and families. You make it possible for patients to stay in apartments near the NIH campus during treatment and follow up. Also, you make it possible for patients and caregivers […]

A New Frontier for a Rare Disease

A year ago, Tedi, 55, loved to bow hunt elk near her home in Montana. She looked the picture of health, but she left her job as a respiratory therapist because she suffered severe bouts of shortness of breath. Recently, on her first visit to the NIH Clinical Center, she pulled a portable respirator behind […]

The Secretary of Health and Human Services visits Gift Wrap Volunteers at the Mall

The Secretary of Health and Human Services Alex M Azar II, (center) stopped by to say hello and thank volunteers for helping two NIH charities at the pop up gift wrapping event at the Westfield Montgomery Mall. Friends at NIH Program Manager Therese Draddy (front right) heads the team and the event benefits us and […]

Friends at NIH and the NIH Federal Credit Union Win “Partnership of the Year Award”

Leadership Montgomery has named Friends of Patients at the NIH and the NIH Federal Credit Union (NIHFCU) as the winner of its “Partnership of the Year Award.” The program honors outstanding local businesses for employee engagement programs in the community. “As a charity organization with a small staff, we couldn’t succeed without the extensive volunteer […]

Innovation in Rare Diseases – Make your Gift Count

Rachel from Indiana came to the NIH this week for the first time with her husband Richard. The 45-year-old mother of four teenagers has a rare autoimmune disease that is progressively life-threatening if untreated. After tests and conferences with her medical team, Rachel is excited that new treatment options are open to her. She hopes […]

NIH Researcher Says Support to Patients is Critical

Patients are the key to successful research at the National Institutes of Health. So, too, are the dedicated researchers with whom they partner. Together, they pioneer lifesaving discoveries. Dr. Carsten Bonnemann says the support to patients from Friends at NIH is essential! “The NIH covers many costs, but we can’t cover all the financial hardship […]

Jackson Thanks NIH and Friends

Jackson, a Portland, Oregon teen-ager, was suffering from a rare genetic disease before it even had a name. He was just two when his mother first noticed his symptoms, swelling in his legs. Later, he also experienced hearing loss and a severe vulnerability to infections. It would be years before the genetic testing needed to […]

READY, SET, SHOP AMAZON SMILE

Shop till you drop and benefit Friends of Patients at the NIH. Simply go to Smile.amazon.com and select Friends of Patients at the NIH as your charity. AmazonSmile is a website operated by Amazon with the same products, prices, and shopping features as Amazon.com. The difference is that when you shop on AmazonSmile, the AmazonSmile […]

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