CORT Supports Patients
Patients and their families who stay in Friends’ apartments near the NIH will be greeted by gift bags provided by CORT. A big thanks to Marty Hyson, Senior Account Representative with CORT, Berkshire Hathaway Company for furniture rental, at the Rockville, MD location. “I know a lot patients are struggling financially, so I thought it […]
NETE’s Big Heart Gives Patients a Home
It’s a crisis when the cost of a hotel or apartment near the NIH means patients risk dropping out of treatment trials. Jolly Somaiya, President and Founder of NET eSolutions (NETE), and Friends’ Board Member, Sandeep Somaiya are deeply committed to ensuring that doesn’t happen. Jolly presented a generous check to Friends’ at a recent […]
Two Women’s Stories of Treatment, Waiting… and Hope
Meet Madalynn, 22 years old from Woodsboro, TX. A young mother of a baby girl, a student, and a Texas hurricane survivor. 49 days! Madalynn counts down the days from her bone marrow transplant when, barring complications, she hopes to return home to see her 8-month old baby girl. She’s from a small town near […]
CBS 60 Minutes features NIH’s Efforts to Cure Sickle Cell Disease this Sunday March 10th
Tune in to CBS’s 60 Minutes Sunday to learn about Dr. John Tisdale’s groundbreaking gene therapy treatment for Sickle Cell Disease. You’ll hear from Dr. Francis Collins, Director of the NIH, and…watch for it…see their band performing at Friends at NIH’s Friends Night Out Gala September 2018! Maybe you were there dancing! Congratulations to Dr. […]
NIH Doctor Studies Her Own Rare Disease
Four years ago, Dr. Marcela Ferrada faced a promising career as a critical care and infectious disease attending physician at both the National Institutes of Health (NIH) Clinical Center and Johns Hopkins. She had attained her goal after completing dual fellowships at the two prestigious medical centers. Then she got very sick. Her diagnosis of […]
Friends Leads the Race for Relapsing Polychondritis Patients
Friends at NIH is partnering with the Relapsing Polychondritis Awareness and Support Foundation (RPASF) in New York City to provide transportation support to patients for travel expenses to the NIH so they may participate in the groundbreaking study of this rare disease. To learn more visit: http://www.polychondritis.org/patient-support/ “Relapsing polychondritis is a disease that few people […]
Friends Wins Partnership of the Year Award
Therese Draddy, Program Manager, accepted the Partnership of the Year Award with Cassandra Hairston from the NIH Federal Credit Union at Leadership Montgomery’s yearly awards luncheon on February 8. “The NIHFCU employee engagement program is an enormous boost to our work,” said Draddy. “Their dedication shows they feel and understand our passion to support patients.” […]
Friends at NIH Joins Rare Disease Day at the NIH Clinical Center
Several thousand rare diseases affect an estimated 30 million people in the United States. Yet only about 5 percent of these diseases have a treatment approved by the Food and Drug Administration. On Feb. 28, 2019, the National Institutes of Health joins the global day of awareness to host Rare Disease Day at the NIH, […]
Save the Dates for Golf and Friends Night Out 2019
Friends’ 11th Annual Golf Tournament Thursday, May 2, 2019 Enjoy golf on a premiere course, barbecue lunch and prizes. Registration and sponsorships open soon. Friends’ Night Out An Evening to Celebrate Thursday, October 24, 2019 Enjoy food, drinks and special musical entertainment for an evening of fun and friendraising. Watch for registration and sponsorships soon. […]
