Jessica was diagnosed with Sickle Cell Disease just after she was born, before she and her parents left the hospital. At two years old came the first bouts with pain caused by this rare genetic disease. The pain could occur anywhere blood circulates and triggered by any stress including climbing a flight of stairs. The […]
Friends of Patients at the NIH (originally Friends of the Clinical Center) was established in 1984 by members of the NIH community who saw first-hand the financial and emotional challenges faced by patients and their families, and the risk to the research should such challenges interrupt someone’s ability to their complete treatment at NIH. The […]
Chinonso (Nonso) was born with sickle cell disease, an inherited disorder affecting red blood cells that leaves those afflicted in cycles of pain and in-and-out of hospitals. A documentary film sparked Nonso’s path to life-changing treatment: she watched the “The G Word with Adam Conover” episode ‘Disease’ that featured the NIH and the breakthrough procedure for Sickle Cell Disease developed at NIH. A bone marrow transplant could be a cure.
Announcing our newest patient support program “Fridays with Ana and Friends” As we welcome summer, we are excited to kick off our newest program bringing smiles to patients and caregivers. On May 5th, we presented our new patient wellness cart with a ribbon cutting ceremony at the NIH Clinical Center’s 3NW and NE cancer units. […]
Join us in wishing a fond farewell to our Friend and partner in HOPE…
Dr. Anthony Fauci
Thank you for your lifelong dedication to science, finding cures and giving HOPE to patients across our nation and around the world.
View the video to hear inspiring words from Dr. Fauci as he received Friends at NIH’s HOPE award.
With the help of the Friends of Patients of the NIH, Jennifer Nsenkyire and her mother, Rose, currently live in a fully furnished apartment in Bethesda, MD, while NIH treats and observes her following a second transplant. Jennifer, originally from Ghana, has suffered from sickle cell anemia from birth. She moved to the United States […]
After receiving treatment at the NIH twice in her lifetime, Beth Cooper says that the National Institutes of Health campus feels like home to her. Beth currently serves as the Vice President of Friends of Patients at the NIH’s board, but her ties to the NIH stem back to when she was an NIH pediatric […]
