Meghan’s Search for a Cure

Meghan has a rare and life-threatening genetic disease, Dock8 deficiency. The disease, itself, was only recently discovered in 2009. Like many genetic diseases, the discovery and possible treatments were made possible by the mapping of the human genome led by Dr. Francis Collins, now Director of the NIH. All her life, Meghan has had hundreds […]

FRIENDS’ NIGHT OUT Celebration 2018

Thank you to sponsors, guests and the band! Sandeep Somaiya, Board Member and Platinum Sponsor from NET eSolutions, introduced NIH Director Francis Collins.   Dr. Collins thanked Friends at NIH for its critical support to patients and families and noted it’s been quite a journey since the first gala in a car dealership to this […]

Danielle is Counting on Us

20 year-old Danielle has been a patient at the National Institutes of Health (NIH) since she was 10. She’s now facing a kidney transplant, and the life-altering chance to be free of dialysis. She’s one of the many patients and families Friends of Patients is helping this year as they navigate critical treatment at the […]

New Immunotherapy Treatment for Stage 4 Breast Cancer

Dr. Steven Rosenberg and his team at the National Cancer Institute have discovered a new immunotherapy treatment for stage 4 breast cancer in a patient unresponsive to other treatments. CBS News with Dr. Steven Rosenberg

Even Better than Flowers – Give Mom a Gift That Can Save Lives

Heather, a 45-year-old single mother from Hartford, Connecticut, has good news! (Friends brought you Heather’s story in January). She suffered chronic illnesses and multiple hospitalizations for five years, but doctors couldn’t figure out what was wrong. Then she came to the NIH, was diagnosed with a rare blood disorder – HES – and enrolled in […]

NIH Studies A Family’s Rare Genetic Disease

At age 28, Santiago has become the first patient at the NIH to undergo a bone marrow transplant for a rare genetic condition, CTLA4. The disorder, which severely impairs a person’s normal regulation of the immune system, was discovered at the NIH’s National Institute of Allergy and Infectious Diseases (NIAID) just four years ago. The […]

Hope for Amber

by Aubrey Rumore Amber, 8, has no problem making her way through the long, wide hallways of the hospital. There’s a cape-like cover draped over the back of her walker embroidered with the bold nickname, “SUPER GIRL.” At every turn, the gregarious, Super Girl Amber is greeted by hugs and hellos. At the age of […]

The First Patient in a Unique Research Study

by Aubrey Rumore John, 22, from San Antonio, TX, is the first and only patient enrolled in a groundbreaking treatment protocol for Aplastic Anemia at the National Institutes of Health (NIH) Clinical Center. He remembers well the day he was diagnosed. It was the fall of 2015. He was on his way to his little […]

A Diagnosis at Last

Heather struggled with chronic illness and multiple hospitalizations for five years. But her doctors couldn’t figure out what was behind the 45-year-old Connecticut woman’s many unpredictable symptoms, which took both a physical and emotional toll and robbed her of her job security. But last fall, Heather’s hematologist reached out to a colleague at the National […]

A First Time Ever Treatment For A Medical Mystery

“Every day there are nearly 100 people working to guarantee that everything goes the right way,” Dr. Andrea Lisco, of the National Institute of Allergy and Infectious Diseases, reminds his patient, Clifford, to boost his morale. As with many of the medical enigmas faced by the NIH, finding answers for 37-year-old Clifford, from Baton Rouge, […]

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