Thank you NETE!

Friends recognizes NET eSolutions (NETE) for their partnership, deep commitment and support to patients and Friends at NIH. In appreciation of their continued generosity, Diane Baker, Special Advisor to the Board and Heidi Williams, CEO, presented the President, Jolly Vasani, and Avneet Hundai, Director of Corporate Support, with a plaque and named NETE a 2018 […]

Even Better than Flowers – Give Mom a Gift That Can Save Lives

Heather, a 45-year-old single mother from Hartford, Connecticut, has good news! (Friends brought you Heather’s story in January). She suffered chronic illnesses and multiple hospitalizations for five years, but doctors couldn’t figure out what was wrong. Then she came to the NIH, was diagnosed with a rare blood disorder – HES – and enrolled in […]

NIH Studies A Family’s Rare Genetic Disease

At age 28, Santiago has become the first patient at the NIH to undergo a bone marrow transplant for a rare genetic condition, CTLA4. The disorder, which severely impairs a person’s normal regulation of the immune system, was discovered at the NIH’s National Institute of Allergy and Infectious Diseases (NIAID) just four years ago. The […]

Hope for Amber

by Aubrey Rumore Amber, 8, has no problem making her way through the long, wide hallways of the hospital. There’s a cape-like cover draped over the back of her walker embroidered with the bold nickname, “SUPER GIRL.” At every turn, the gregarious, Super Girl Amber is greeted by hugs and hellos. At the age of […]

The First Patient in a Unique Research Study

by Aubrey Rumore John, 22, from San Antonio, TX, is the first and only patient enrolled in a groundbreaking treatment protocol for Aplastic Anemia at the National Institutes of Health (NIH) Clinical Center. He remembers well the day he was diagnosed. It was the fall of 2015. He was on his way to his little […]

Be a Volunteer for Research at the NIH

Do you know that the NIH Clinical Center recruits healthy volunteers to participate in research studies? Healthy participants play a key role in the development of new drugs and treatments. They provide researchers with important information for comparison with people who have specific illnesses. Every year nearly 3,500 healthy volunteers participate in research studies at […]

Friends’ 10th Annual Golf Tournament at the Argyle Country Club: May 17, 2018.

SAVE THE DATE! For Friends’ 10th Annual Golf Tournament at the Argyle Country Club: May 17, 2018. Join us for a fun day on the links for a wonderful cause! Play golf on a premier course while enjoying a continental breakfast, barbecue lunch, refreshments, awards and VIP guest speakers! Sponsorships are available: please call (301) […]

The Waiting List for Friends’ Apartments is Growing!

In 2017, Friends at NIH provided families 859 NIGHTS in our apartments near the NIH Clinical Center. At average per diem rates of hotels in the area, this saved families, $128,850! Housing support is more than 60% of our program services provided to patients and their families. The need is great and the waiting list […]

A Diagnosis at Last

Heather struggled with chronic illness and multiple hospitalizations for five years. But her doctors couldn’t figure out what was behind the 45-year-old Connecticut woman’s many unpredictable symptoms, which took both a physical and emotional toll and robbed her of her job security. But last fall, Heather’s hematologist reached out to a colleague at the National […]

A First Time Ever Treatment For A Medical Mystery

“Every day there are nearly 100 people working to guarantee that everything goes the right way,” Dr. Andrea Lisco, of the National Institute of Allergy and Infectious Diseases, reminds his patient, Clifford, to boost his morale. As with many of the medical enigmas faced by the NIH, finding answers for 37-year-old Clifford, from Baton Rouge, […]

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