Aaron H. has suffered from a rare genetic deficiency since he was two years old. His entire life, he had numerous pneumonias and other serious illnesses, yet he didn’t know why. Then, finally he was was diagnosed with Rag 1 deficiency at the NIH six years ago. “It’s a huge relief to know your enemy […]
Congrats this week to our Friends’ former interns, Willem Miller, graduate of Georgetown University with a major in Mathematics; and Benjamin Campbell, graduate Cum Laude with honors in Philosophy, and double minors in History and Environmental Sciences. Good luck to both of you on future endeavors!
It’s a crisis when the cost of a hotel or apartment near the NIH means patients risk dropping out of treatment trials. Jolly Somaiya, President and Founder of NET eSolutions (NETE), and Friends’ Board Member, Sandeep Somaiya are deeply committed to ensuring that doesn’t happen. Jolly presented a generous check to Friends’ at a recent […]
Friends at NIH is partnering with the Relapsing Polychondritis Awareness and Support Foundation (RPASF) in New York City to provide transportation support to patients for travel expenses to the NIH so they may participate in the groundbreaking study of this rare disease. To learn more visit: http://www.polychondritis.org/patient-support/ “Relapsing polychondritis is a disease that few people […]
Therese Draddy, Program Manager, accepted the Partnership of the Year Award with Cassandra Hairston from the NIH Federal Credit Union at Leadership Montgomery’s yearly awards luncheon on February 8. “The NIHFCU employee engagement program is an enormous boost to our work,” said Draddy. “Their dedication shows they feel and understand our passion to support patients.” […]
Friends’ 11th Annual Golf Tournament Thursday, May 2, 2019 Enjoy golf on a premiere course, barbecue lunch and prizes. Registration and sponsorships open soon. Friends’ Night Out An Evening to Celebrate Thursday, October 24, 2019 Enjoy food, drinks and special musical entertainment for an evening of fun and friendraising. Watch for registration and sponsorships soon. […]
Supporters help patients in so many creative ways. Mina Jain, Research Coordinator in the NIH Clinical Center Physical Therapy Department asked her holiday party guests to bring gift cards instead of hostess gifts to donate to Friends’ patients and families. Mina delivered the bagful of colorful gift cards recently to Program Manager Therese Draddy. The […]