Welcome to our first patient in our new ”Cure Sickle Cell Initiative” program apartment

With the help of the Friends of Patients of the NIH, Jennifer Nsenkyire and her mother, Rose, currently live in a fully furnished apartment in Bethesda, MD, while NIH treats and observes her following a second transplant. Jennifer, originally from Ghana, has suffered from sickle cell anemia from birth. She moved to the United States […]

Amazing words for a parent to hear!

Hello Friends, “I think we can safely say Dixon is cured,” Dr. John Tisdale recently told Dixon’s father, Leonard. What amazing words for a parent to hear from his son’s doctor! 17-year-old Dixon is one the young brave patients, treated in an experimental study at the National Institutes of Health, that Friends of Patients at […]

Friends’ Night Out Honors Patients and Researchers

From Nov 2017 Newsletter… It was a party with a mission at Friends of Patients at the NIH’s recent annual Gala in Bethesda. Patients and researchers were the guests of honor. Seventeen-year-old Dixon, who has Sickle Cell Disease, and his father, Leonard, both from Uganda, were featured in a video describing how his illness can […]

Dr. John Tisdale Researches Lifesaving Cures for Sickle Cell Disease

“Sickle Cell Disease (SCD) causes immense suffering in patients.  When you see a patient in (sickle cell) crisis, you just want to do something.” John Tisdale, M.D. is a physician scientist who has spent his career working with Sickle Cell Disease. Rather than simply focus on seeing patients, Dr. Tisdale splits his time between the lab and seeing patients. […]

May 2017 Newsletter

Friends at NIH  Helps Deliver Hope Anthony P. is a postal carrier. So he  knows  that old saying -“neither rain, nor  sleet, nor gloom of night” – as well as anyone. Unfortunately, Anthony has an illness that can painfully keep him from his appointed rounds and put his life on hold. Anthony has Sickle Cell […]

December 2016 Newsletter

Check out our monthly newsletter here…
This month: Meet some of our heroes, Dixon: Medical Hero, NETE – Sandeep Somaiya and Jolly Vasani Committed to Friends and NIH Patients, Talking Music and Science with Yo-Yo Ma

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