Rachel from Indiana came to the NIH this week for the first time with her husband Richard. The 45-year-old mother of four teenagers has a rare autoimmune disease that is progressively life-threatening if untreated. After tests and conferences with her medical team, Rachel is excited that new treatment options are open to her. She hopes […]
Patients are the key to successful research at the National Institutes of Health. So, too, are the dedicated researchers with whom they partner. Together, they pioneer lifesaving discoveries. Dr. Carsten Bonnemann says the support to patients from Friends at NIH is essential! “The NIH covers many costs, but we can’t cover all the financial hardship […]
Jackson, a Portland, Oregon teen-ager, was suffering from a rare genetic disease before it even had a name. He was just two when his mother first noticed his symptoms, swelling in his legs. Later, he also experienced hearing loss and a severe vulnerability to infections. It would be years before the genetic testing needed to […]
Shop till you drop and benefit Friends of Patients at the NIH. Simply go to Smile.amazon.com and select Friends of Patients at the NIH as your charity. AmazonSmile is a website operated by Amazon with the same products, prices, and shopping features as Amazon.com. The difference is that when you shop on AmazonSmile, the AmazonSmile […]
Consider Choosing FRIENDS and helping patients at the NIH for the CFC and on Giving Tuesday! FRIENDS provides housing, transportation and support for essential expenses to NIH patients and families. FRIENDS is an NIH charity located in the NIH Clinical Center, the nation’s largest research hospital. TOGETHER we can save lives and support research. Go […]
Eduardo, 59, a successful vegetable producer lost his business and home in Texas due to a rare eye disorder that causes the muscles around his eyes to spasm and his eyes to close involuntarily. The disorder has left him functionally blind. The unusual disease, blepharospasm, initially attacked him without warning when he was driving with […]
The Maryland Association of Health Care Executives (MAHCE) recently honored Friends at NIH with a 2018 Community Outreach Award. Heidi Williams, CEO, accepted the award from Vamsee Potluri, MAHCE and spoke at the MAHCE’s annual meeting in Towson, MD. The MAHCE recognizes healthcare organizations for outstanding work in increased overall health awareness and efforts to […]
Friends at NIH staff, Therese Draddy, Program Manager, Heidi Williams, CEO, and Char Silberg, Communications Manager, kicked off Friends’ Combined Federal Campaign (CFC) this month at NIH’s special event embracing the theme “Show Some Love.” WHY CHOOSE FRIENDS? (To all NIHers and Federal Government Employees) It’s simple – three big reasons! #1 FRIENDS provides housing, […]
Meghan has a rare and life-threatening genetic disease, Dock8 deficiency. The disease, itself, was only recently discovered in 2009. Like many genetic diseases, the discovery and possible treatments were made possible by the mapping of the human genome led by Dr. Francis Collins, now Director of the NIH. All her life, Meghan has had hundreds […]
Thank you to sponsors, guests and the band! Sandeep Somaiya, Board Member and Platinum Sponsor from NET eSolutions, introduced NIH Director Francis Collins. Dr. Collins thanked Friends at NIH for its critical support to patients and families and noted it’s been quite a journey since the first gala in a car dealership to this […]
