Happy Holidays Friends! Upon his diagnosis with a malignant brain tumor, Mykyta, 40 years old, from Chicago, came to the NIH Clinical Center seeking treatment. Throughout the course of Mykyta’s battle, his wife, Yuliya, has been by his side. Friends of Patients at the NIH, with your support, placed the Ukrainian couple in a nearby […]
Friends at NIH provides emergency financial support in many forms to patients and families facing medical crises. Less talked about but equally essential to patients and caregivers’ mental health are breaks and outings that many of us take for granted –an evening dinner at a restaurant, a shopping trip, a movie or a sports event. […]
Hello Friends, “I think we can safely say Dixon is cured,” Dr. John Tisdale recently told Dixon’s father, Leonard. What amazing words for a parent to hear from his son’s doctor! 17-year-old Dixon is one the young brave patients, treated in an experimental study at the National Institutes of Health, that Friends of Patients at […]
From Nov 2017 Newsletter… Michael points out the apartment window to the fall foliage that’s marked the change of seasons since his arrival at the NIH and reflects on facing the biggest medical challenge of his life. He’s had plenty of reasons to be anxious about the bone marrow transplant he recently received to treat […]
Destiny’s journey to the NIH for treatment was not easy. This 20-year-old from Montgomery, Alabama was diagnosed with a rare genetic disease, GATA 2 deficiency. GATA 2 is a gene that makes a protein that plays a role in regulating cells in the bone marrow to make red and white blood cells and platelets. But […]
My name is Sarah Rosenfeld and I’m an NIH patient and volunteer. I’m passionate about paying forward the amazing gift of care and life that my dedicated NIH doctors and researchers have given to me. I’m working to support patients through Friends of Patients at the NIH because I know how incredibly scary and isolating […]
Fatima, 19, from Mauritania, celebrated her treatments by naming every bag of life-saving blood cells she received. Her aunt, Mary, through tears, calls her the “bravest” woman she has ever met. Fatima has severe aplastic anemia — her bone marrow produced no blood cells. A year ago, Fatima called her aunt and uncle (Americans who live in Vietnam) […]
