A Family Man’s Road to Recovery

Christian’s world turned upside down when he was diagnosed with mycobacterium avium complex (MAC), a widely dispersed infection throughout his body. According to Christian’s doctor, Dr. Steve Holland, due to Christian’s symptoms, it was apparent he has an immune dysfunction. Since Christian’s arrival at the Clinical Center in January, Dr. Holland has been trying to […]

A Sponsor Thank You and a Way to Help Us

All of us at Friends at NIH would like to thank the NIH Federal Credit Union for their support during these difficult times.

A Grateful Patient Now Helping Others

If you ask Carolyn C. her age, she’ll be ecstatic to tell you that she is turning 63 very soon. Why is she so excited? “Nobody would’ve even imagined I’d make it to 63,”Carolyn said.

Motorcycle Ride for Charity! Friday, June 26, 2020

Federal News Network’s Federal Drive anchor Tom Temin is hosting a Motorcycle Ride for Charity to benefit the Federal Employee Education & Assistance Fund and Friends of Patients at the NIH.

THANK YOU FOR YOUR SUPPORT

We asked. You answered. Over the past two weeks you, our supporters, have helped us provide for patients in need at the NIH by donating to our work. Your generosity has allowed us to give assistance to a mother of three suffering from respiratory disease, a father who is the sole provider for his family […]

“I’m the New Me” – An Update on Madalynn One Year After Her Bone Marrow Transplant

In February 2019, Madalynn was lying in a hospital bed at the Clinical Center, facing complications after her bone marrow transplant. Fast forward to February 2020 when Madalynn, now 24 years old, visited the Clinical Center for her one-year follow-up. She feels happy, healthy and essentially symptom-free. Madalynn suffered from a GATA 2 Deficiency, a […]

2020 Charity Golf Tournament Rescheduled

In an abundance of caution and in the best interest of our guests, sponsors, and staff we have decided to postpone our charity golf tournament, scheduled for April 20th, to later in the year. Please know this decision was not made lightly, we have been in consultation with the expert health professionals that work here at the NIH and have come to the conclusion that moving our tournament date is the best way to ensure the health and well-being of everyone involved during this crucial time.

Resolution of Respect for Grant Matthew Perry

The Friends of Patients at the NIH lost a valued board member on December 14, 2019 with the death of Grant Matthew Perry, aged 66.

Andrew Derr Joins Friends of Patients at the NIH’s Board of Directors

FOR IMMEDIATE RELEASE
BETHESDA, Md. (Jan. 1, 2020)
Today, Friends of Patients at the NIH announces that Andrew Derr has been elected to its board of directors.

Jay Shah Joins Friends of Patients at the NIH’s Board of Directors

FOR IMMEDIATE RELEASE
BETHESDA, Md. (Jan. 1, 2020)
Today, Friends of Patients at the NIH announces that Jay Shah has been elected to its board of directors.

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