Meet Warren, Tatiana and their family… A grateful patient and major donor shares his journey to the NIH. We are a family originally from Costa Rica. My wife Tatiana and I are blessed to be parents to two children: Rebeca, 31, a professional nutritionist, and Alejandro, 22, who is currently studying Electronic Engineering. My illness, […]
Dear Friends, As we embrace this beautiful season of gratitude, we at Friends of Patients at the NIH want to take a moment to reflect on the incredible community that surrounds us. We are profoundly thankful for your unwavering dedication to our mission, which allows us to extend our reach and support to those in […]
Jessica was diagnosed with Sickle Cell Disease just after she was born, before she and her parents left the hospital. At two years old came the first bouts with pain caused by this rare genetic disease. The pain could occur anywhere blood circulates and triggered by any stress including climbing a flight of stairs. The […]
Friends of Patients at the NIH (originally Friends of the Clinical Center) was established in 1984 by members of the NIH community who saw first-hand the financial and emotional challenges faced by patients and their families, and the risk to the research should such challenges interrupt someone’s ability to their complete treatment at NIH. The […]
Chinonso (Nonso) was born with sickle cell disease, an inherited disorder affecting red blood cells that leaves those afflicted in cycles of pain and in-and-out of hospitals. A documentary film sparked Nonso’s path to life-changing treatment: she watched the “The G Word with Adam Conover” episode ‘Disease’ that featured the NIH and the breakthrough procedure for Sickle Cell Disease developed at NIH. A bone marrow transplant could be a cure.
Announcing our newest patient support program “Fridays with Ana and Friends” As we welcome summer, we are excited to kick off our newest program bringing smiles to patients and caregivers. On May 5th, we presented our new patient wellness cart with a ribbon cutting ceremony at the NIH Clinical Center’s 3NW and NE cancer units. […]
