Bonnie’s Brain Tumor “Gift”
Having a brain tumor would devastate most people. But Bonnie L. says it’s actually been something of a gift. “I was a workaholic,” she says. “It was a gift that taught me to slow down, and have balance and gratitude in my life.” Bonnie, a West Palm Beach, FL., resident, describes herself as a positive […]
Aaron’s Story – Bold Treatment and Strong Family Support
Aaron H. has suffered from a rare genetic deficiency since he was two years old. His entire life, he had numerous pneumonias and other serious illnesses, yet he didn’t know why. Then, finally he was was diagnosed with Rag 1 deficiency at the NIH six years ago. “It’s a huge relief to know your enemy […]
Daniel’s Story – The Gift of Housing
Cooking is Daniel’s passion and work. A chef and restaurant consultant from Lawton, OK, Daniel, 53, is stirring up a special stovetop meal in the comfort of an apartment, sponsored by Friends’ donors at The Flats 8300 near the NIH campus. Daniel feels good and says standing, including at the stove, is part of his […]
Matthew’s Drive for a Cure
Matthew and wife, Dana, both worked two jobs until recently. He has always been too proud and independent to need or ask for help, Dana explains. But his journey from his home near Baltimore to the National Institutes of Health to enroll in a treatment study tipped the scales of challenges and they reached out […]
Thank You Dr. Cooper
Dr. Terri Cooper recently retired from the Board of Directors after serving nearly five years. Terri brought her professional insights, personal passion and extensive network of colleagues and friends to enrich our development and marketing work to raise the visibility of Friends. “There is so much competition among charities out there. Friends at NIH is […]
NETE’s Big Heart Gives Patients a Home
It’s a crisis when the cost of a hotel or apartment near the NIH means patients risk dropping out of treatment trials. Jolly Somaiya, President and Founder of NET eSolutions (NETE), and Friends’ Board Member, Sandeep Somaiya are deeply committed to ensuring that doesn’t happen. Jolly presented a generous check to Friends’ at a recent […]
CBS 60 Minutes features NIH’s Efforts to Cure Sickle Cell Disease this Sunday March 10th
Tune in to CBS’s 60 Minutes Sunday to learn about Dr. John Tisdale’s groundbreaking gene therapy treatment for Sickle Cell Disease. You’ll hear from Dr. Francis Collins, Director of the NIH, and…watch for it…see their band performing at Friends at NIH’s Friends Night Out Gala September 2018! Maybe you were there dancing! Congratulations to Dr. […]
NIH Doctor Studies Her Own Rare Disease
Four years ago, Dr. Marcela Ferrada faced a promising career as a critical care and infectious disease attending physician at both the National Institutes of Health (NIH) Clinical Center and Johns Hopkins. She had attained her goal after completing dual fellowships at the two prestigious medical centers. Then she got very sick. Her diagnosis of […]
