Welcome to our first patient in our new ”Cure Sickle Cell Initiative” program apartment
With the help of the Friends of Patients of the NIH, Jennifer Nsenkyire and her mother, Rose, currently live in a fully furnished apartment in Bethesda, MD, while NIH treats and observes her following a second transplant. Jennifer, originally from Ghana, has suffered from sickle cell anemia from birth. She moved to the United States […]
Beth: A Grateful Patient
After receiving treatment at the NIH twice in her lifetime, Beth Cooper says that the National Institutes of Health campus feels like home to her. Beth currently serves as the Vice President of Friends of Patients at the NIH’s board, but her ties to the NIH stem back to when she was an NIH pediatric […]
A Family Man’s Road to Recovery
Christian’s world turned upside down when he was diagnosed with mycobacterium avium complex (MAC), a widely dispersed infection throughout his body. According to Christian’s doctor, Dr. Steve Holland, due to Christian’s symptoms, it was apparent he has an immune dysfunction. Since Christian’s arrival at the Clinical Center in January, Dr. Holland has been trying to […]
Bonnie’s Brain Tumor “Gift”
Having a brain tumor would devastate most people. But Bonnie L. says it’s actually been something of a gift. “I was a workaholic,” she says. “It was a gift that taught me to slow down, and have balance and gratitude in my life.” Bonnie, a West Palm Beach, FL., resident, describes herself as a positive […]
Aaron’s Story – Bold Treatment and Strong Family Support
Aaron H. has suffered from a rare genetic deficiency since he was two years old. His entire life, he had numerous pneumonias and other serious illnesses, yet he didn’t know why. Then, finally he was was diagnosed with Rag 1 deficiency at the NIH six years ago. “It’s a huge relief to know your enemy […]
Daniel’s Story – The Gift of Housing
Cooking is Daniel’s passion and work. A chef and restaurant consultant from Lawton, OK, Daniel, 53, is stirring up a special stovetop meal in the comfort of an apartment, sponsored by Friends’ donors at The Flats 8300 near the NIH campus. Daniel feels good and says standing, including at the stove, is part of his […]
Matthew’s Drive for a Cure
Matthew and wife, Dana, both worked two jobs until recently. He has always been too proud and independent to need or ask for help, Dana explains. But his journey from his home near Baltimore to the National Institutes of Health to enroll in a treatment study tipped the scales of challenges and they reached out […]
