Even Better than Flowers – Give Mom a Gift That Can Save Lives

Heather, a 45-year-old single mother from Hartford, Connecticut, has good news! (Friends brought you Heather’s story in January). She suffered chronic illnesses and multiple hospitalizations for five years, but doctors couldn’t figure out what was wrong. Then she came to the NIH, was diagnosed with a rare blood disorder – HES – and enrolled in […]

NIH Studies A Family’s Rare Genetic Disease

At age 28, Santiago has become the first patient at the NIH to undergo a bone marrow transplant for a rare genetic condition, CTLA4. The disorder, which severely impairs a person’s normal regulation of the immune system, was discovered at the NIH’s National Institute of Allergy and Infectious Diseases (NIAID) just four years ago. The […]

Hope for Amber

by Aubrey Rumore Amber, 8, has no problem making her way through the long, wide hallways of the hospital. There’s a cape-like cover draped over the back of her walker embroidered with the bold nickname, “SUPER GIRL.” At every turn, the gregarious, Super Girl Amber is greeted by hugs and hellos. At the age of […]

The First Patient in a Unique Research Study

by Aubrey Rumore John, 22, from San Antonio, TX, is the first and only patient enrolled in a groundbreaking treatment protocol for Aplastic Anemia at the National Institutes of Health (NIH) Clinical Center. He remembers well the day he was diagnosed. It was the fall of 2015. He was on his way to his little […]

A Diagnosis at Last

Heather struggled with chronic illness and multiple hospitalizations for five years. But her doctors couldn’t figure out what was behind the 45-year-old Connecticut woman’s many unpredictable symptoms, which took both a physical and emotional toll and robbed her of her job security. But last fall, Heather’s hematologist reached out to a colleague at the National […]

A First Time Ever Treatment For A Medical Mystery

“Every day there are nearly 100 people working to guarantee that everything goes the right way,” Dr. Andrea Lisco, of the National Institute of Allergy and Infectious Diseases, reminds his patient, Clifford, to boost his morale. As with many of the medical enigmas faced by the NIH, finding answers for 37-year-old Clifford, from Baton Rouge, […]

The Season of Giving

From Nov 2017 Newsletter… Join us this giving season to help patients and their families and make tomorrow’s life-saving treatments happen today. Friends of Patients at the NIH partners with patients and researchers to turn HOPE INTO DISCOVERY AND DISCOVERY INTO CURES Friends at NIH provides emergency financial and emotional support to patients in experimental […]

Dr. Steven Rosenberg – Immunotherapy Pioneer

The NIH’s Dr. Steven Rosenberg – Pioneering Researcher, Surgeon, Mentor and Mensch Decades ago, Dr. Steven Rosenberg was the first to show that immunotherapy – harnessing the body’s own immune system to kill cancer cells – could work. Since then, he has been at the center of efforts to advance this fast-emerging field to the point where […]

Dr. John Tisdale Researches Lifesaving Cures for Sickle Cell Disease

“Sickle Cell Disease (SCD) causes immense suffering in patients.  When you see a patient in (sickle cell) crisis, you just want to do something.” John Tisdale, M.D. is a physician scientist who has spent his career working with Sickle Cell Disease. Rather than simply focus on seeing patients, Dr. Tisdale splits his time between the lab and seeing patients. […]

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