On Friday, June 26th, 2020, Federal News Network’s Federal Drive anchor Tom Temin organized a Motorcycle Ride for Charity to benefit Friends of Patients at the NIH. Fifteen motorcycle riders joined dozens of non-riding contributors to raise more than $5,000 for the Federal Employees Education and Assistance Fund and Friends of Patients at the NIH. […]
Jeremy*, a young man from Louisiana, came to the NIH with a rare immunodeficiency disorder early this year after spending time in a local hospital. Since Jeremy’s mother has been at the NIH with him as his caregiver, she has been unable to work. After exhausting all of her paid leave days and borrowing money […]
In August 2019, 56-year-old Rhonda was experiencing intense back and side pains. Thinking these were complications from an earlier case of pneumonia, Rhonda went to her doctor. Unfortunately, Rhonda had Non-Hodgkins lymphoma, a cancer of the lymphatic system which makes it difficult for the body to fight off infections.
After receiving treatment at the NIH twice in her lifetime, Beth Cooper says that the National Institutes of Health campus feels like home to her. Beth currently serves as the Vice President of Friends of Patients at the NIH’s board, but her ties to the NIH stem back to when she was an NIH pediatric […]
Christian’s world turned upside down when he was diagnosed with mycobacterium avium complex (MAC), a widely dispersed infection throughout his body. According to Christian’s doctor, Dr. Steve Holland, due to Christian’s symptoms, it was apparent he has an immune dysfunction. Since Christian’s arrival at the Clinical Center in January, Dr. Holland has been trying to […]
In February 2019, Madalynn was lying in a hospital bed at the Clinical Center, facing complications after her bone marrow transplant. Fast forward to February 2020 when Madalynn, now 24 years old, visited the Clinical Center for her one-year follow-up. She feels happy, healthy and essentially symptom-free. Madalynn suffered from a GATA 2 Deficiency, a […]
In an abundance of caution and in the best interest of our guests, sponsors, and staff we have decided to postpone our charity golf tournament, scheduled for April 20th, to later in the year. Please know this decision was not made lightly, we have been in consultation with the expert health professionals that work here at the NIH and have come to the conclusion that moving our tournament date is the best way to ensure the health and well-being of everyone involved during this crucial time.
Having a brain tumor would devastate most people. But Bonnie L. says it’s actually been something of a gift. “I was a workaholic,” she says. “It was a gift that taught me to slow down, and have balance and gratitude in my life.” Bonnie, a West Palm Beach, FL., resident, describes herself as a positive […]
