Rhonda’s “Beyond Awesome” Experience With Friends at NIH

In August 2019, 56-year-old Rhonda was experiencing intense back and side pains. Thinking these were complications from an earlier case of pneumonia, Rhonda went to her doctor. Unfortunately, Rhonda had Non-Hodgkins lymphoma, a cancer of the lymphatic system which makes it difficult for the body to fight off infections.

Beth: A Grateful Patient

After receiving treatment at the NIH twice in her lifetime, Beth Cooper says that the National Institutes of Health campus feels like home to her. Beth currently serves as the Vice President of Friends of Patients at the NIH’s board, but her ties to the NIH stem back to when she was an NIH pediatric […]

A Family Man’s Road to Recovery

Christian’s world turned upside down when he was diagnosed with mycobacterium avium complex (MAC), a widely dispersed infection throughout his body. According to Christian’s doctor, Dr. Steve Holland, due to Christian’s symptoms, it was apparent he has an immune dysfunction. Since Christian’s arrival at the Clinical Center in January, Dr. Holland has been trying to […]

A Sponsor Thank You and a Way to Help Us

All of us at Friends at NIH would like to thank the NIH Federal Credit Union for their support during these difficult times.

A Grateful Patient Now Helping Others

If you ask Carolyn C. her age, she’ll be ecstatic to tell you that she is turning 63 very soon. Why is she so excited? “Nobody would’ve even imagined I’d make it to 63,”Carolyn said.

“I’m the New Me” – An Update on Madalynn One Year After Her Bone Marrow Transplant

In February 2019, Madalynn was lying in a hospital bed at the Clinical Center, facing complications after her bone marrow transplant. Fast forward to February 2020 when Madalynn, now 24 years old, visited the Clinical Center for her one-year follow-up. She feels happy, healthy and essentially symptom-free. Madalynn suffered from a GATA 2 Deficiency, a […]

2020 Charity Golf Tournament Rescheduled

In an abundance of caution and in the best interest of our guests, sponsors, and staff we have decided to postpone our charity golf tournament, scheduled for April 20th, to later in the year. Please know this decision was not made lightly, we have been in consultation with the expert health professionals that work here at the NIH and have come to the conclusion that moving our tournament date is the best way to ensure the health and well-being of everyone involved during this crucial time.

Bonnie’s Brain Tumor “Gift”

Having a brain tumor would devastate most people. But Bonnie L. says it’s actually been something of a gift. “I was a workaholic,” she says. “It was a gift that taught me to slow down, and have balance and gratitude in my life.” Bonnie, a West Palm Beach, FL., resident, describes herself as a positive […]

Suite America’s Support For Families

Suite America has provided a furnished apartment near the NIH, free of charge, to Friends’ patients and families for seven years. Numerous families have enjoyed the privacy and comfort of the apartment at The Monterrey, located on Rockville Pike, and the many amenities the building offers. James Corry, Director of National Sales in the Northern […]

Aaron’s Story – Bold Treatment and Strong Family Support

Aaron H. has suffered from a rare genetic deficiency since he was two years old. His entire life, he had numerous pneumonias and other serious illnesses, yet he didn’t know why. Then, finally he was was diagnosed with Rag 1 deficiency at the NIH six years ago. “It’s a huge relief to know your enemy […]

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