Race for RP Dedicates June to ‘Friends with Relapsing Polychondritis’

Race for RP helps patients travel to the National Institutes of Health.
In celebration of the outstanding global awareness generated by the Race for RP logo flying on the No. 63 Ed Carpenter Racing Scuderia Corsa Chevrolet driven by Ed Jones at this year’s Indianapolis 500, Race for RP has dedicated the month of June to helping its friends who have relapsing polychondritis or “RP”.

Matthew and his wife, Dana

Matthew’s Drive for a Cure

Matthew and wife, Dana, both worked two jobs until recently. He has always been too proud and independent to need or ask for help, Dana explains. But his journey from his home near Baltimore to the National Institutes of Health to enroll in a treatment study tipped the scales of challenges and they reached out […]

Sierra’s Comeback

Sierra smiled – and shed a few tears — as she posed recently with her physician, Dr. Mark Ball. After a round of tests and a sleepless night, she’d gotten the good news that she’s cancer free. It’s too soon for her to consider herself cured – that takes five years – but she was […]

CORT Supports Patients

Patients and their families who stay in Friends’ apartments near the NIH will be greeted by gift bags provided by CORT. A big thanks to Marty Hyson, Senior Account Representative with CORT, Berkshire Hathaway Company for furniture rental, at the Rockville, MD location. “I know a lot patients are struggling financially, so I thought it […]

NETE’s Big Heart Gives Patients a Home

It’s a crisis when the cost of a hotel or apartment near the NIH means patients risk dropping out of treatment trials. Jolly Somaiya, President and Founder of NET eSolutions (NETE), and Friends’ Board Member, Sandeep Somaiya are deeply committed to ensuring that doesn’t happen. Jolly presented a generous check to Friends’ at a recent […]

Two Women’s Stories of Treatment, Waiting… and Hope

Meet Madalynn, 22 years old from Woodsboro, TX. A young mother of a baby girl, a student, and a Texas hurricane survivor. 49 days! Madalynn counts down the days from her bone marrow transplant when, barring complications, she hopes to return home to see her 8-month old baby girl. She’s from a small town near […]

Friends Leads the Race for Relapsing Polychondritis Patients

Friends at NIH is partnering with the Relapsing Polychondritis Awareness and Support Foundation (RPASF) in New York City to provide transportation support to patients for travel expenses to the NIH so they may participate in the groundbreaking study of this rare disease. To learn more visit: http://www.polychondritis.org/patient-support/ “Relapsing polychondritis is a disease that few people […]

Save the Dates for Golf and Friends Night Out 2019

Friends’ 11th Annual Golf Tournament Thursday, May 2, 2019 Enjoy golf on a premiere course, barbecue lunch and prizes. Registration and sponsorships open soon. Friends’ Night Out An Evening to Celebrate Thursday, October 24, 2019 Enjoy food, drinks and special musical entertainment for an evening of fun and friendraising. Watch for registration and sponsorships soon. […]

Servando’s Story

Servando, a 37-year-old chef, from Tulsa, OK, has Chronic Myeloid Leukemia, or CML. His treatment has been more complicated than for most patients with this potentially fatal blood cancer. So as a last resort, he came to the NIH with the hope for a cure. In CML, the bone marrow makes too many white blood […]

What Your Gift Means

Thank you to our generous donors from “Giving Tuesday” through the holidays, and to volunteers who wrapped gifts at the mall to benefit our patients and families. You make it possible for patients to stay in apartments near the NIH campus during treatment and follow up. Also, you make it possible for patients and caregivers […]

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