THANK YOU FOR YOUR SUPPORT
We asked. You answered. Over the past two weeks you, our supporters, have helped us provide for patients in need at the NIH by donating to our work. Your generosity has allowed us to give assistance to a mother of three suffering from respiratory disease, a father who is the sole provider for his family […]
“I’m the New Me” – An Update on Madalynn One Year After Her Bone Marrow Transplant
In February 2019, Madalynn was lying in a hospital bed at the Clinical Center, facing complications after her bone marrow transplant. Fast forward to February 2020 when Madalynn, now 24 years old, visited the Clinical Center for her one-year follow-up. She feels happy, healthy and essentially symptom-free. Madalynn suffered from a GATA 2 Deficiency, a […]
Bonnie’s Brain Tumor “Gift”
Having a brain tumor would devastate most people. But Bonnie L. says it’s actually been something of a gift. “I was a workaholic,” she says. “It was a gift that taught me to slow down, and have balance and gratitude in my life.” Bonnie, a West Palm Beach, FL., resident, describes herself as a positive […]
Suite America’s Support For Families
Suite America has provided a furnished apartment near the NIH, free of charge, to Friends’ patients and families for seven years. Numerous families have enjoyed the privacy and comfort of the apartment at The Monterrey, located on Rockville Pike, and the many amenities the building offers. James Corry, Director of National Sales in the Northern […]
Aaron’s Story – Bold Treatment and Strong Family Support
Aaron H. has suffered from a rare genetic deficiency since he was two years old. His entire life, he had numerous pneumonias and other serious illnesses, yet he didn’t know why. Then, finally he was was diagnosed with Rag 1 deficiency at the NIH six years ago. “It’s a huge relief to know your enemy […]
Ana Continues to Make a Lasting Impact
For patients in lifesaving treatment studies and their caregivers, it’s hard to take a break. Days are often long and unpredictable. Ana’s Impact continues to provide emotional and social support to families by providing a break – outings to a restaurant, a movie, even a trip to the mall. Patients tell us that even a […]
Daniel’s Story – The Gift of Housing
Cooking is Daniel’s passion and work. A chef and restaurant consultant from Lawton, OK, Daniel, 53, is stirring up a special stovetop meal in the comfort of an apartment, sponsored by Friends’ donors at The Flats 8300 near the NIH campus. Daniel feels good and says standing, including at the stove, is part of his […]
