The Flats 8300 Apartments, managed by The Bozzuto Group, sponsored a Spanish themed benefit for Friends at NIH. Debra Parker, Director of Residence Services and producer of the event, explains how the benefit originated. “We love having you as residents here in the building and we really believe in supporting what you do, so we […]
Ron is the father of six children – a mix of biological, step and adopted. Amazingly, five are teenagers, all looking to him for guidance in challenging years. The 42-year-old Chicagoan has kidney cancer which makes him keenly aware of his mortality and his desire to be a good role model for his family. He […]
Please consider honoring your mother with a special gift to help patients and their families this Mother’s Day. Konjit has lung cancer. She’s enrolled in a treatment trial at the NIH in hopes of prolonging her life. Her greatest pride is her 21-old-daughter, a student at Stanford, and her 19-year-old son, also in college. She […]
Race for RP helps patients travel to the National Institutes of Health.
In celebration of the outstanding global awareness generated by the Race for RP logo flying on the No. 63 Ed Carpenter Racing Scuderia Corsa Chevrolet driven by Ed Jones at this year’s Indianapolis 500, Race for RP has dedicated the month of June to helping its friends who have relapsing polychondritis or “RP”.
Matthew and wife, Dana, both worked two jobs until recently. He has always been too proud and independent to need or ask for help, Dana explains. But his journey from his home near Baltimore to the National Institutes of Health to enroll in a treatment study tipped the scales of challenges and they reached out […]
Patients and their families who stay in Friends’ apartments near the NIH will be greeted by gift bags provided by CORT. A big thanks to Marty Hyson, Senior Account Representative with CORT, Berkshire Hathaway Company for furniture rental, at the Rockville, MD location. “I know a lot patients are struggling financially, so I thought it […]
It’s a crisis when the cost of a hotel or apartment near the NIH means patients risk dropping out of treatment trials. Jolly Somaiya, President and Founder of NET eSolutions (NETE), and Friends’ Board Member, Sandeep Somaiya are deeply committed to ensuring that doesn’t happen. Jolly presented a generous check to Friends’ at a recent […]
Meet Madalynn, 22 years old from Woodsboro, TX. A young mother of a baby girl, a student, and a Texas hurricane survivor. 49 days! Madalynn counts down the days from her bone marrow transplant when, barring complications, she hopes to return home to see her 8-month old baby girl. She’s from a small town near […]
Friends at NIH is partnering with the Relapsing Polychondritis Awareness and Support Foundation (RPASF) in New York City to provide transportation support to patients for travel expenses to the NIH so they may participate in the groundbreaking study of this rare disease. To learn more visit: http://www.polychondritis.org/patient-support/ “Relapsing polychondritis is a disease that few people […]
