Amazing words for a parent to hear!

Hello Friends, “I think we can safely say Dixon is cured,” Dr. John Tisdale recently told Dixon’s father, Leonard. What amazing words for a parent to hear from his son’s doctor! 17-year-old Dixon is one the young brave patients, treated in an experimental study at the National Institutes of Health, that Friends of Patients at […]

The Season of Giving

From Nov 2017 Newsletter… Join us this giving season to help patients and their families and make tomorrow’s life-saving treatments happen today. Friends of Patients at the NIH partners with patients and researchers to turn HOPE INTO DISCOVERY AND DISCOVERY INTO CURES Friends at NIH provides emergency financial and emotional support to patients in experimental […]

Friends’ Night Out Honors Patients and Researchers

From Nov 2017 Newsletter… It was a party with a mission at Friends of Patients at the NIH’s recent annual Gala in Bethesda. Patients and researchers were the guests of honor. Seventeen-year-old Dixon, who has Sickle Cell Disease, and his father, Leonard, both from Uganda, were featured in a video describing how his illness can […]

A Place to Heal

From Nov 2017 Newsletter… Michael points out the apartment window to the fall foliage that’s marked the change of seasons since his arrival at the NIH and reflects on facing the biggest medical challenge of his life. He’s had plenty of reasons to be anxious about the bone marrow transplant he recently received to treat […]

How YOU can Help Critically-ill Patients

From October 2017 Newsletter Consider becoming a volunteer. Drop us a note and let us know how you’d like to share your talents and time to help patients and we’ll share ideas about how you can help. Friends welcomes individual and corporate team volunteers. Consider looking ahead and making Friends at NIH a part of […]

A Sister’s Gift of Life

Destiny’s journey to the NIH for treatment was not easy. This 20-year-old from Montgomery, Alabama was diagnosed with a rare genetic disease, GATA 2 deficiency. GATA 2 is a gene that makes a protein that plays a role in regulating cells in the bone marrow to make red and white blood cells and platelets. But […]

The President of The Board Explains How The NIH Saved His Life

   I’m not certain if you are aware, but, I’ve been incredibly fortunate to have had my life saved by physicians at the National Institutes of Health (NIH) not once, but several times. As you might imagine, I am passionate about the research that goes on daily at the NIH – that saves lives and […]

Dr. Steven Rosenberg – Immunotherapy Pioneer

The NIH’s Dr. Steven Rosenberg – Pioneering Researcher, Surgeon, Mentor and Mensch Decades ago, Dr. Steven Rosenberg was the first to show that immunotherapy – harnessing the body’s own immune system to kill cancer cells – could work. Since then, he has been at the center of efforts to advance this fast-emerging field to the point where […]

Board Member Knows the NIH’s Success with Rare Diseases First-Hand

In the 1960s when I was a kid, we lived just a few blocks from the National Institutes of Health. My Dad walked to work. He was a clinical cancer researcher, and had a lab and office in Building 10, also known as the Clinical Center. Whenever I visited Dad, it was always with a […]

A Patient Turned Impassioned Volunteer

My name is Sarah Rosenfeld and I’m an NIH patient and volunteer. I’m passionate about paying forward the amazing gift of care and life that my dedicated NIH doctors and researchers have given to me.  I’m working to support patients through Friends of Patients at the NIH because I know how incredibly scary and isolating […]

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